Patient Resources
Building a healthier tomorrow starts with commitment today. That’s why we’re partnering with the liver health community to develop solutions that aim to improve lives and long-term health outcomes.
Check out the list below to learn more about resources available for patients living with serious liver diseases.
Education, connection and support for patients living with liver diseases.
American Liver Foundation
ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.
| Website: | liverfoundation.org |
|---|---|
| Facebook: | Main ALF Facebook Page |
| Life With PBC Facebook Group | |
| Twitter: | twitter.com/liverUSA |
| Instagram: | instagram.com/americanliver |
| Patient Forum: | ALF Inspire Patient Forum |
Canadian PBC Society
This national organization is made up of regional groups of patients and other concerned individuals throughout Canada.
| Website: | pbc-society.ca |
|---|---|
| Facebook: | facebook.com/CanadianPBCSociety/ |
| Twitter: | twitter.com/PBC_Canada |
| Email: | info@pbc-society.ca |
| Contact: | Gail Wright, President |
Community Liver Alliance
The Community Liver Alliance is dedicated to supporting the community through liver disease awareness, prevention, education, advocacy and research.
| Website: | communityliveralliance.org |
|---|---|
| Facebook: | facebook.com/CommunityLiverAlliance |
| Twitter: | twitter.com/CLiverAlliance |
| Instagram: | instagram.com/communityliveralliance |
| LinkedIn: | linkedin.com/company/communityliveralliance |
| Email: | support@communityliveralliance.org |
Friends of the PBC Foundation
Inspired by the U.K.'s PBC Foundation, this emerging nonprofit is dedicated to serving those affected by PBC in the United States.
| Website: | friendsofthepbcfoundation.org |
|---|---|
| Facebook: | facebook.com/profile.php?id=61569900205766 |
| Instagram: | instagram.com/friendsofthepbcfoundation/ |
| Email: | info@friendsofthepbcfoundation.org |
| Contact: | L.Marie Asad, President |
Global Liver Institute
GLI aims to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration and scaling optimal approaches to help eradicate liver diseases.
| Website: | globalliver.org |
|---|---|
| Facebook: | facebook.com/GlobalLiver |
| Twitter: | twitter.com/GlobalLiver |
| Instagram: | instagram.com/globalliverinstitute |
| Email: | info@globalliver.org |
PBC Foundation
A global patient organization based in the U.K, providing support to people with PBC and their families and friends.
| Website: | pbcfoundation.org.uk |
|---|---|
| Facebook: | facebook.com/PBCFoundation |
| Twitter: | twitter.com/PBCFoundation |
| Instagram: | instagram.com/pbcfoundation/ |
| Email: | info@pbcfoundation.org.uk |
| Contact: | Chris Mitchell, Head of Education and Development |
PBCers
One of the largest PBC online support groups, which offers education and support to people living with PBC and raises funds for PBC research.
| Website: | PBCers.org |
|---|---|
| Facebook: | facebook.com/PBCersOrg |
| Twitter: | twitter.com/PBCers |
| Email: | pbcers@pbcers.org |
| Contact: | Carol Roberts, President |
PSC Partners Seeking a Cure
PSC Partners Seeking a Cure is dedicated to providing education and support to PSC patients, families and caregivers and to raising funds to research causes, treatments and cures for this rare disease.
| Website: | pscpartners.org |
|---|---|
| Facebook: | facebook.com/PscPartnersSeekingACure |
| Email: | contactus@pscpartners.org |
*Not comprehensive of all advocacy groups. Intercept Pharmaceuticals does not endorse these organizations. The information/links are meant for informational purposes and are not meant to replace a physician’s medical advice.
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Exploring Racial Differences and Disparities in PBC Care
Intercept Pharmaceuticals, Inc., a wholly owned biopharmaceutical subsidiary of Alfasigma S.p.A., has voluntarily withdrawn OCALIVA® (obeticholic acid) from the market for the treatment of primary biliary cholangitis (PBC), effective November 14.
Patients should talk to their healthcare professionals and may also contact Intercept's patient support services (Interconnect at 1-844-622-4278) through December 31, 2025.
Healthcare professionals can contact Medical Information at medinfo@interceptpharma.com or 1-844-782-4278. Additionally, patients or healthcare professionals may request Full Prescribing Information or the OCALIVA Medication Guide by contacting medinfo@interceptpharma.com.
For all other inquiries please contact: info@interceptpharma.com