Rejuvenating tomorrow starts with commitment today. That’s why we’re partnering with the liver health community to develop solutions that aim to improve lives and long-term health outcomes.
To learn more about resources available for patients living with liver diseases like PBC, NASH, and PSC check out the resources listed below.
Connect with liver disease advocacy groups.*
Education, connection and support for patients living with liver diseases.
ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.
| Website: | liverfoundation.org |
|---|---|
| Facebook: | Main ALF Facebook Page |
| Life With NASH Facebook Group | |
| Life With PBC Facebook Group | |
| Twitter: | twitter.com/liverUSA |
| Instagram: | instagram.com/americanliver |
| Patient Forum: | ALF Inspire Patient Forum |
GLI aims to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration and scaling optimal approaches to help eradicate liver diseases.
| Website: | globalliver.org |
|---|---|
| Facebook: | facebook.com/GlobalLiver |
| Twitter: | twitter.com/GlobalLiver |
| Instagram: | instagram.com/globalliverinstitute |
| International NASH Day: | international-nash-day.com |
| Email: | info@globalliver.org |
Intercept has developed the Interconnect® patient support program to guide patients through disease education, treatment and financial assistance options.
Are you a person living with PBC or a healthcare professional who treats PBC?
This site is intended for U.S. audiences only.
Connect with other patients living with PBC, resources, the PBC Living® App and more.
This site is intended for U.S. audiences only.
Connect with PBC advocacy groups.*
Empowering the PBC patient community through information, peer connection and support.
One of the largest PBC online support groups, which offers education and support to people living with PBC and raises funds for PBC research.
| Website: | PBCers.org |
|---|---|
| Facebook: | facebook.com/PBCersOrg |
| Twitter: | twitter.com/PBCers |
| Email: | pbcers@pbcers.org |
| Contact: | Carol Roberts, President |
A global patient organization providing support to people with PBC and their families and friends.
| Website: | pbcfoundation.org.uk |
|---|---|
| Facebook: | facebook.com/PBCFoundation |
| Twitter: | twitter.com/PBCFoundation |
| Instragram: | instagram.com/pbcfoundation/ |
| Email: | info@pbcfoundation.org.uk |
| Contact: | Chris Mitchell, Head of Education and Development |
This national organization is made up of regional groups of patients and other concerned individuals throughout Canada.
| Website: | pbc-society.ca |
|---|---|
| Facebook: | facebook.com/CanadianPBCSociety/ |
| Twitter: | twitter.com/PBC_Canada |
| Email: | info@pbc-society.ca |
| Contact: | Gail Wright, President |
NASH Actually is a comprehensive online resource for people living with NASH, a progressive form of fatty liver disease. It’s also a resource for friends, family and caregivers.
This site is intended for U.S. audiences only.
Connect with NASH advocacy groups.*
Peer connection, discussion and support for the NASH patient community.
The FLF aims to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
| Website: | fattyliverfoundation.org |
|---|---|
| Facebook: | Main FLF Facebook Page |
| Fatty Liver Foundation Facebook Group | |
| Twitter: | twitter.com/LiverSaver |
| Patient Forum: | Health Unlocked Patient Forum |
| Email: | wayne@fattyliverfoundation.org |
NASH kNOWledge was established to increase public awareness of NAFLD and NASH in the Pittsburgh area, and across the country, through partnerships with other organizations with similar goals.
| Website: | nash-now.org |
|---|---|
| Facebook: | NASH Knowledge Facebook |
| Twitter: | twitter.com/KnowledgeNash |
| Instagram: | instagram.com/nash_knowledge/ |
Connect with PSC advocacy groups.*
Education and support for the PSC patient community.
PSC Partners Seeking a Cure is dedicated to providing education and support to PSC patients, families and caregivers and to raising funds to research causes, treatments and cures for this rare disease.
| Website: | pscpartners.org |
|---|---|
| Facebook: | facebook.com/PscPartnersSeekingACure |
| Email: | contactus@pscpartners.org |
*Not comprehensive of all advocacy groups. Intercept Pharmaceuticals does not endorse these organizations. The information/links are meant for informational purposes and are not meant to replace a physician’s medical advice.
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Exploring Racial Differences and Disparities in PBC Care