Patient Resources

Rejuvenating tomorrow starts with commitment today. That’s why we’re partnering with the liver health community to develop solutions that aim to improve lives and long-term health outcomes.

To learn more about resources available for patients living with liver diseases like PBC, NASH and PSC check out the resources listed below.

GENERAL LIVER DISEASE PATIENT RESOURCES

Connect with liver disease advocacy groups.*

Education, connection and support for patients living with liver diseases.

American Liver Foundation

ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.

Website: liverfoundation.org
Facebook: Main Facebook Page: facebook.com/liverinfo
  Life With NASH Facebook Group: facebook.com/groups/282616099043047
  Life With PBC Facebook Group: facebook.com/groups/1881641552083412
Patient Forum: inspire.com/groups/american-liver-foundation

Global Liver Institute

GLI aims to improve the lives of individuals and families impacted by liver disease through promoting innovation, encouraging collaboration, and scaling optimal approaches to help eradicate liver diseases.

Website: globalliver.org
Email: info@globalliver.org

PBC PATIENT RESOURCES



Intercept has developed the Interconnect® patient support program to guide patients through disease education, treatment, and financial assistance options.

Are you a person living with PBC or a healthcare professional who treats PBC?

This site is intended for U.S. audiences only.

VISIT INTERCONNECT


Connect with other patients living with PBC, resources, the PBC Living® App, and more.

This site is intended for U.S. audiences only.

VISIT LIVING WITH PBC®


The Practice to Policy® Health Awards Program supports initiatives that aim to improve health outcomes for people living with progressive non-viral liver diseases by encouraging innovation as well as providing a platform for best practice sharing in the liver community.

VISIT PRACTICE TO POLICY®

Connect with PBC advocacy groups.*
Empowering the PBC patient community through information, peer connection and support.

PBCers

The largest PBC online support group, with almost 3000 members worldwide

Website: PBCers.org
Facebook: facebook.com/PBCersOrg
Email: PBCersOrg96@aol.com
Contact: Linie Moore, President

PBC Foundation

A patient organization in the UK providing support to people with PBC and their families and friends

Website: pbcfoundation.org.uk
Email: info@pbcfoundation.org.uk

Canadian PBC Society

This national organization is made up of regional groups of patients and other concerned individuals throughout Canada.

Website: pbc-society.ca
Email: info@pbc-society.ca

NASH PATIENT RESOURCES

Connect with NASH advocacy groups.*

Peer connection, discussion and support for the NASH patient community.

Fatty Liver Foundation

The FLF aims to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.

Website: fattyliverfoundation.org
Twitter: twitter.com/LiverSaver
Patient Forum: healthunlocked.com/fatty-liver-nash
Email: wayne@fattyliverfoundation.org

NASH kNOWledge

NASH kNOWledge was established to increase public awareness of NAFLD and NASH in the Pittsburgh area, and across the country, through partnerships with other organizations with similar goals.

Website: nash-now.org

PSC PATIENT RESOURCES

Connect with PSC advocacy groups.*

Education and support for the PSC patient community.

PSC Partners Seeking a Cure

PSC Partners Seeking a Cure is dedicated to providing education and support to PSC patients, families and caregivers and to raising funds to research causes, treatments and cures for this rare disease.

Website: pscpartners.org
Facebook: facebook.com/PscPartnersSeekingACure
Email: contactus@pscpartners.org

*Not comprehensive of all advocacy groups. Intercept Pharmaceuticals does not endorse these organizations. The information/links are meant for informational purposes and are not meant to replace a physician’s medical advice.