Much progress has been made in primary biliary cholangitis (PBC) research and education, but the impact of race on PBC care and outcomes is not fully understood. Some Black, Indigenous and People of Color (BIPOC) patients with PBC describe experiences of not being seen and heard by their healthcare providers. In an effort to build awareness and dialogue around this complex issue, we convened a multidisciplinary panel of experts to review available data and share their perspectives both from the physician and patient point of view. Some questions we tackled include:
These slides include key epidemiology and outcomes data that you can use to enhance your educational presentations about PBC. Quotes from real patients living with PBC are also included.
This fact sheet can be printed as a flyer or distributed as a PDF via email. It includes key facts about racial disparities in PBC, insights from PBC experts and patient advocates, and a checklist to help primary care and other referring providers recognize the signs of symptoms of PBC in all races and ethnic backgrounds.
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Exploring Racial Differences and Disparities in PBC Care