Transparency Disclosures

Please refer below to transparency disclosures in local language and with English translation.

Austria

Belgium

Canada

Finland

France

Germany

Ireland

Italy

Luxembourg

The Netherlands

Portugal

Spain

Sweden

Switzerland

United Kingdom


Austria

Cooperation with patient organizations
Zusammenarbeit mit Patientenorganisationen

Intercept supported the following patient organizations in Austria in the 2021 calendar year. The information is not final and is updated from time to time, usually annually.

Intercept hat im Kalenderjahr 2021 folgende Patientenorganisationen in Österreich unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Transparenz PTO Intercept 2021

Intercept supported the following patient organizations in Austria in the 2020 calendar year. The information is not final and is updated from time to time, usually annually.

Intercept hat im Kalenderjahr 2020 folgende Patientenorganisationen in Österreich unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Transparenz PTO Intercept 2020

Intercept supported the following patient organizations in Austria in the 2019 calendar year. The information is not final and is updated from time to time, usually annually.

Intercept hat im Kalenderjahr 2019 folgende Patientenorganisationen in Österreich unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Patientenorganisation Betrag Verwendungszweck
Hepatitis Hilfe Oesterreich Plattform Gesunde Leber €5,000 Unterstuetzung des NASH / NAFLD Tages.
Hepatitis Hilfe Oesterreich Plattform Gesunde Leber €5,000 Unterstuetzung der Basisarbeit 2019.
Hepatitis Hilfe Oesterreich Plattform Gesunde Leber €2,000 Grant zur Unterstuetzung von medizinischen Aktivitaeten fuer International PBC Day.
Pro Rare Austria €2,000 Sponsorship des Rare Disease Day 2019.

2021 Austria Transparency Disclosure
2020 Austria Transparency Disclosure
2019 Austria Transparency Disclosure


Belgium

Relations with patient associations
Relatie met patiëntenverenigingen
Relations avec les associations de patients
Zusammenarbeit mit Patientenorganisationen

Information regarding Intercept’s support for patient associations in Belgium can be found by consulting the Belgian transparency website (https://www.betransparent.be).

Intercept’s ondersteuning van patiëntenorganisaties in België is te vinden in het Belgische transparantieplatform (https://www.betransparent.be).

Les informations concernant le soutien d’Intercept aux associations de patients en Belgique peuvent être trouvées en consultant le site de la Transparence belge (https://www.betransparent.be).

Intercepts Unterstützungen an Patientenorganisationen in Belgien finden Sie auf der Belgischen Transparenzplattform (https://www.betransparent.be).

Intercept has supported the following patient organizations in Belgium during calendar year 2018. Information about this is subject to change and will be updated from time to time, usually once a year.

Intercept heeft de volgende patiëntenverenigingen gesteund in België in het jaar 2018. Deze informatie kan veranderen en zal regelmatig bijgewerkt worden, gewoonlijk op jaarlijkse basis.

Intercept a appuyé les associations de patients suivantes en Belgique pendant l’année civile 2018. Les informations à ce propos sont susceptibles de changer et seront mises à jour de temps à autre, généralement une fois par an.

Intercept hat im Kalenderjahr 2018 folgende Patientenorganisationen in Belgien unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Patiëntenvereniging
Bedrag
Doel van de betaling
European Liver Patients' Association €7,200 Financiële ondersteuning voor standruimte op de EASL NAFLD Summit in september 2018.
Association de patients
Montant
Objet du paiement
European Liver Patients' Association €7,200 Soutien financier pour le stand réservé lors du congrès EASL NAFLD de septembre 2018.
Patientenorganisation
Betrag
Verwendungszweck
European Liver Patients' Association €7,200 Finanzielle Unterstützung für Standflächen beim EASL NAFLD-Gipfel im September 2018.

Canada

Not applicable.


Finland

Relations with patient organizations
Suhteet potilasjärjestöihin

During the calendar year 2019, Intercept supported the following patient organizations located in Finland. The information may change and may therefore be updated from time to time, typically annually.

Intercept tuki kalenterivuoden 2019 aikana seuraavia Suomessa sijaitsevia potilasjärjestöjä. Tiedot saattavat muuttua, ja niitä voidaan päivittää sen vuoksi ajoittain, tyypillisesti vuosittain.

Potilasjärjestö
Määrä
Maksun tarkoitus
The Finnish Kidney & Liver Association

Munuais- Ja Maksaliitto

€5.000 Vuoden 2019 Maksaviikolle osoitettu tuki.
The Finnish Kidney & Liver Association

Munuais- Ja Maksaliitto

€5.000 The European Association for the Study of the Liver (EASL) - järjestön sappikirroosia sairastaville potilaille laatiman potilasohjeen kääntämiseen osoitettu apuraha.

During the calendar year 2018, Intercept supported the following patient organizations located in Finland. The information may change and may therefore be updated from time to time, typically annually.

Intercept tuki kalenterivuoden 2018 aikana seuraavia Suomessa sijaitsevia potilasjärjestöjä. Tiedot saattavat muuttua, ja niitä voidaan päivittää sen vuoksi ajoittain, tyypillisesti vuosittain.

Potilasjärjestö
Määrä
Maksun tarkoitus
The Finnish Kidney and Liver Association €10.000 Lisääntyvä tietoisuus maksasairaudesta Suomessa antamalla apurahaa maksuviikolle 2018, johon kuuluu julkisia luentoja ja sairaanhoitajien koulutuspäivää

During the calendar year 2017, Intercept supported the following patient organizations located in Finland. The information may change and may therefore be updated from time to time, typically annually.

Intercept tuki kalenterivuoden 2017 aikana seuraavia Suomessa sijaitsevia potilasjärjestöjä. Tiedot saattavat muuttua, ja niitä voidaan päivittää sen vuoksi ajoittain, tyypillisesti vuosittain.

Potilasjärjestö
Määrä
Maksun tarkoitus
The Finnish Kidney and Liver Association - Suomen maksa ja munuais- Liitto €914 Matka- ja majoituskulut PBC potilasverkoston tapaamisessa 2.3.2017 Amsterdam, Hollanti.

Individual transfers of value to treatment service providers and healthcare organizations
Yksittäiset arvonsiirrot hoitopalvelujen tarjoajille ja terveydenhuollon organisaatioille

We disclose these costs as required by the Medicines Act.
Paljastamme nämä kulut lääkelain edellyttämällä tavalla.

2019 Finland Transparency Disclosure

2018 Finland Transparency Disclosure

2017 Finland Transparency Disclosure


Germany

Cooperation with patient organizations
Zusammenarbeit mit Patientenorganisationen

Intercept supported the following patient organizations in Germany in the 2021 calendar year. The information is not final and is updated from time to time, usually annually.

Intercept hat im Kalenderjahr 2021 folgende Patientenorganisationen in Deutschland unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Patientenorganisation
Betrag
Verwendungszweck
Deutsche Gesellschaft für Gastroenterologie €368 Abonnement Lebenszeichen 2021
Deutsche Gesellschaft für Gastroenterologie €5.000 Zuwendung Baisis mini 2021
Leberhilfe Projekt gUG €3.367 Entwurf und Unterstützung für Expertengruppe Patientenumfrage
Leberhilfe Projekt gUG €360 Honorare
Leberhilfe Projekt gUG €5.700 Unterstützung für Website pbcnews.info
Leberhilfe Projekt gUG €12.000 2021 Patientenschulungsseminare - März
Leberhilfe Projekt gUG €10.000 2021 Patientenschulungsseminare - Mai
Leberhilfe Projekt gUG €10.000 2021 Patientenschulungsseminare - September

Intercept supported the following patient organizations in Germany in the 2020 calendar year. The information is not final and is updated from time to time, usually annually.

Intercept hat im Kalenderjahr 2020 folgende Patientenorganisationen in Deutschland unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Patientenorganisation
Betrag
Verwendungszweck
Deutsche Leberhilfe e.V. €5.000 Unterstützung der Vereinstätigkeiten und -veranstaltungen zur Untertützung von Leberpatienten
Leberhilfe Projekt gUG €31.330 Online Runde Tische mit PBC Patienten und MFAs
Leberhilfe Projekt gUG €300 Patientenvideo anlässlich INTL NASH Day
Leberhilfe Projekt gUG €12.850 NASH Film: Versorgungsmodell
Leberhilfe Projekt gUG €270 DACH NASH Policy Forum Moderation
Leberhilfe Projekt gUG €9.831,75 P2P Projektfinanzierung
Leberhilfe Projekt gUG €951 NASH Patient Expert Meeting, Berlin

Intercept supported the following patient organizations in Germany in the 2019 calendar year. The information is not final and is updated from time to time, usually annually.

Intercept hat im Kalenderjahr 2019 folgende Patientenorganisationen in Deutschland unterstützt. Die Informationen sind nicht endgültig und werden von Zeit zu Zeit, in der Regel jährlich, aktualisiert.

Patientenorganisation
Betrag
Verwendungszweck
Deutsche Leberhilfe e.V. €1.104 Abonnement Lebenszeichen
Deutsche Leberhilfe e.V. €5.000 Unterstützung der Vereinstätigkeiten und -veranstaltungen zur Untertützung von Leberpatienten
Leberhilfe Projekt gUG €3.900 Unterstützung Überstezung der EASL PBC Patienten Leitlinie
Leberhilfe Projekt gUG €32.200 Unterstützung Relaunch www.PBCNews.info
Leberhilfe Projekt gUG €51.500 Unterstützung Produktion der Informationsmappe für PBC Patienten
Leberhilfe Projekt gUG €16.100 Unterstützung Entwicklung eines E-Learnings/Quiz
Leberhilfe Projekt gUG €26.500 Unterstützung Entwicklung und Durchführung einer Patientenumfrage
Leberhilfe Projekt gUG €1.286 Beratungstätigkeit in einem Intercept Workshop in München (June, 12, 2019)
Leberhilfe Projekt gUG €5.000 Unterstützung Konzept eines NASH Positionspapiers
Leberhilfe Projekt gUG €1.566 Teilnahme an INTL NASH Expert Group Meeting in Berlin (Dec, 17, 2019)
Leberhilfe Projekt gUG €2.125 Jurorentätigkeit in Practice to Policy Programm
Leberhilfe Projekt gUG €1.700 Unterstützung des Projekts "Arzt Patienten Dialog in PBC"
Leberhilfe Projekt gUG €1.563 Referententätigkeit bei Nurse Academy 2019

Disclosure of Payments to Healthcare Professionals and Healthcare Organizations
Offenlegung von Zahlungen an Angehörige im Gesundheitswesen und Gesundheitsorganisationen

In accordance with the AKG Transparency Code, Intercept discloses all individual donations of value to physicians and healthcare organizations. Reporting is in the respective national language. Please note that there may be slight discrepancies in the disclosure of figures on this page compared to other sources. Further explanations can be found in the methodological notes.

In Übereinstimmung mit dem AKG-Transparenzkodex legt Intercept alle individuellen geldwerten Zuwendungen an Ärzte und Organisationen des Gesundheitswesens offen. Die Berichterstattung erfolgt in der jeweiligen Landessprache. Bitte beachten Sie, dass es zu geringfügigen Unterschieden zwischen der Offenlegung der Zahlen auf dieser Seite im Vergleich zu anderen Quellen kommen kann. Weitere Erläuterungen befinden sich in den Methodischen Hinweisen.

2021 Intercept Germany Transparency Disclosure
2021 Intercept Germany Transparency Methodology

2020 Intercept Germany Transparency Disclosure
2020 Intercept Germany Transparency Methodology

2019 Intercept Germany Transparency Disclosure
2019 Intercept Germany Transparency Methodology


Ireland

Not applicable.


Italy

Not applicable.


Luxembourg

Not applicable.


The Netherlands

Support patient associations
Ondersteuning patiëntenverenigingen

Intercept’s support for patient organizations for 2019 in the Netherlands can be found in the Transparency Register (https://www.transparantieregister.nl/nl-nl/home).

Intercept’s ondersteuning van patiëntenorganisaties voor 2019 in Nederland is te vinden in het Transparantieregister (https://www.transparantieregister.nl/nl-nl/home).

Intercept provided support for the following patient associations based in the Netherlands during calendar year 2018. The information is subject to change and will be updated from time to time, usually on an annual basis.

Intercept verleende ondersteuning voor de volgende patiëntenverenigingen die in Nederland zijn gevestigd tijdens kalenderjaar 2018. De informatie is onderhevig aan verandering en zal van tijd tot tijd worden bijgewerkt, meestal op jaarbasis.

Patiëntenvereniging
Bedrag
Ondersteunde activiteiten
Nederlandse Leverpatiënten Vereniging €3,500.00 Financiële ondersteuning voor het vertalen, aanpassen en creëren van Nederlandse PBC-Patiënt Richtlijnen gebaseerd op de EASL PBC-Patiënt Richtlijnen
Nederlandse Leverpatiënten Vereniging €5,000.00 Financiële ondersteuning voor het ontwikkelen en uitbrengen van een brochure voor huisartsen over PBC en de "do's" en "don'ts" aangaande mensen met PBC
Nederlandse Leverpatiënten Vereniging €150.32 Honorarium voor presenteren op de EASL PBC Netwerk Vergadering

Intercept provided support for the following patient associations located in the Netherlands during calendar year 2017. The information is subject to change and will be updated from time to time, usually on an annual basis.

Intercept verleende ondersteuning voor de volgende patiëntenverenigingen die in Nederland zijn gevestigd tijdens kalenderjaar 2017. De informatie is onderhevig aan verandering en zal van tijd tot tijd worden bijgewerkt, meestal op jaarbasis.

Patiëntenvereniging
Bedrag
Ondersteunde activiteiten
Nederlandse Leverpatiënten Vereniging €550 Vertaling naar het Engels van de stigmavideo ‘Leverpatiënten zijn het zat’
  €2,500 PBC-consortium: belangenbehartiging, patiëntondersteuning en delen van informatie
  €3,000 PBC-consortium vergadering
  €3,000 Testgroep voor patiëntenmaterialen
  €1,000 NASH-consortium: belangenbehartiging en delen van informatie
Nederlandse Leverpatiënten Vereniging namens het EU PBC Patient Network €30,000 Ondersteuning voor het organiseren van de International PBC Day campagne in natura door middel van het aanbieden van diensten door een agentschap

2019 Netherlands Transparency Disclosure - R&D
2018 Netherlands Transparency Disclosure – R&D
2017 Netherlands Transparency Disclosure – R&D


Portugal

Relationship with Patient Associations
Relacionamento com as Associações de Doentes

In 2018, no support was granted to patient associations in Portugal.

No ano de 2018 não foi concedido nem pao qualquer apoio a associações de doentes em Portugal.

Intercept provided support to the following patient organizations in Portugal during 2017. This information, subject to change, will be updated periodically, normally once a year.

A Intercept disponibilizou apoio à(s) seguinte(s) associações de doentes, em Portugal, durante o ano de 2017, Esta informação, passível de ser alterada, será actualizada periodicamente, normalmente uma vez por ano.

Associação de doentes
Valor
Motivo do Apoio
Rarissimas-Associação Nacional Deficiencias Mentais e Raras €14,500.00 Grant para o Projecto CBP -Cidadania Rara- tradução de vídeo de CBP, desenvolvimento e produção de guia de bolso, gravação de um curso de treino em CBP, e custos de viagem e alojamento.
Rarissimas-Associação Nacional Deficiencias Mentais e Raras €643.00 Viagens e acomodação, para a participação no “PBC Patient Network Meeting”, que teve lugar a 2 de Março de 2017, em Amsterdão, Holanda

Intercept provided support to the following patient organizations in Portugal during 2016. This information, subject to change, will be updated periodically, normally once a year.

A Intercept disponibilizou apoio à(s) seguinte(s) associações de doentes, em Portugal, durante o ano de 2016, Esta informação, passível de ser alterada, será actualizada periodicamente, normalmente uma vez por ano.

Associação de doentes
Valor
Motivo do Apoio
Rarissimas-Associação Nacional Deficiencias Mentais e Raras €20,810 Apoio relativo ao prémio Practice to Policy, para a Europa e Canadá, com que a Raríssimas foi distinguida pelo seu projecto de informação sobre a doença (IN)Forma Rara.
Rarissimas-Associação Nacional Deficiencias Mentais e Raras €724 Apoio relativo aos custos associados à participação de dois representantes da Raríssimas num Advisory Board sobre a rede Europeia de CBP.
Rarissimas-Associação Nacional Deficiencias Mentais e Raras €4,600 Apoio dado através do trabalho de uma agência de comunicação que colaborou com a Rarissimas em actividades relacionadas com a comunicação associada ao Dia Mundial da CBP e do prémio Practice to Policy relativo ao projecto (IN)Forma Rara.

Spain

Not applicable.


Sweden

Open reporting of value transfers from 2019 for healthcare professionals (HCPs), healthcare providers (HCOs) and patient associations can be found in the LIF collaboration database (https://www.lif.se/etik/samarbetsdatabaser/).

Öppen rapportering av värdeöverföringar från 2019 för Hälso- och sjukvårdspersonal (HCP):er, hälso- och sjukvård (HCO):er och patientföreningar finns i LIF-samarbetsdatabasen (https://www.lif.se/etik/samarbetsdatabaser/).

Relationship with Patient Organisations
Relation med Patientorganisationer

Intercept has provided support to the following Swedish patient organizations in 2018. The information may change and will be updated on an annual basis.

Intercept har gett stöd till följande svenska patientorganisationer 2018. Informationen kan komma att ändras och kommer att uppdateras på årlig bas.

Patient Förening
Belopp
Syfte
PBCSverige SEK 11,232 Stipendium för PBC patient mötet i Stockholm

Intercept has provided support to the following Swedish patient organizations in 2017. The information may change and will be updated on an annual basis.

Intercept har gett stöd till följande svenska patientorganisationer 2017. Informationen kan komma att ändras och kommer att uppdateras på årlig bas.

Patientorganisation
Belopp
Syfte
Renata Brucker-Privatkonto SEK 1,439 Pbc-föreningen i Sverige c/o Brucker, Smedbyvägen 26 184 32 Åkersberga, Sverige

2018 Intercept Sweden Transparency Disclosure
2018 Intercept Sweden Transparency Methodology


Switzerland

Not applicable.


United Kingdom

Statement for 2019 of Intercept Pharma Europe Ltd. for the Modern Slavery Act

Statement for 2020 of Intercept Pharma Europe Ltd. for the Modern Slavery Act

Statement for 2020 of Intercept Pharma Europe Ltd. for Section 172(1) of the Companies Act

Relationships with Patient Organizations and the Public

In accordance with the ABPI Code of Conduct, Intercept discloses all payments to patient organizations and members of the public, including patients and journalists. The information is subject to change and will be updated accordingly from time to time, typically on an annual basis. Further explanation can be found in the methodological note below.

2021 PAG Transparency Disclosure

2021 PAG Transparency Disclosure Methodology

Summary of collaborative working agreement with PBC Foundation UK

Intercept provided support for the following patient organizations based in the UK during calendar year 2020. The information is subject to change and will be updated accordingly from time to time, typically on an annual basis.

Patient Organization
Amount
Purpose of Payment
British Liver Trust £1,800 Support for the design & support to complete a Patient Survey Expert Group.
British Liver Trust £150 Support for patient interviews.
British Liver Trust £20,000 Grant to support the core activities of the British Liver Trust.
British Liver Trust £13,500 Collaboration to work in partnership for action on NASH policy.
Liver4Life £93.50 Support to travel to P2P Summit.
PBC Foundation £1,410 Honoraria for being a Practice to Policy Programme judge representative.
PBC Foundation £9,758 Grant to support the delivery of digital services during Covid-19.
PBC Foundation £25,000 Grant to support the core activities of the PBC Foundation.

Intercept provided support for the following patient organizations based in the UK during calendar year 2019. The information is subject to change and will be updated accordingly from time to time, typically on an annual basis.

Patient Organization
Amount
Purpose of Payment
British Liver Trust £230 Support to attend the NASH expert group meeting Dec 2019.
British Liver Trust £5,000 Grant to support GP Communications Project.
British Liver Trust £5,850 Grant to support Northern Ireland Liver Workshop & GP Liver Awareness.
Liver North £10,000 Support to develop PBC Disease Awareness - Patient DVD.
Liver4Life £705 Support to attend NASH Patient Stories filming.
Liver4Life £381 Support to attend the NASH expert group meeting Dec 2019.
Liver4Life £480 Support for participation in an Advisory Board.
Liver4Life £1,194 Speaking engagement fee and attendance costs for internal staff meeting.
PBC Foundation £500 Donation towards the Three Peaks Challenge.
PBC Foundation £5,000 Grant towards vital support and information services provided by the PBC Foundation.
PBC Foundation £444 Support to attend the PBC Patient App Meeting.
PBC Foundation £576 Speaking engagement fees and travel costs for Practice to Policy Webinar and judging.
PBC Foundation £960 Support for providing consulting services on the development of PBC patient videos.
PBC Foundation £2,331 Support for providing consulting services on the "Know your Number" campaign, including travel costs.
PBC Foundation £15,000 Support for collaboration on the PBC Patient Experience Survey.
PBC Foundation £30,000 Grant towards vital support and information services provided by the PBC Foundation.

Disclosures are made in local currency (GBP). Where payments are made in foreign currency, these have been converted to GBP using the exchange rate applied by our Finance team for the month in which the payment was made.